COVID-19 Is Threatening the Progress of Clinical Trials

The financial impact of the COVID-19 pandemic presents a potential risk to the future of clinical trials in rare diseases. Rare diseases by their nature are not very prevalent in the population, therefore, any treatment for a rare disease will only have a small number of beneficiaries. In addition, so-called orphan drug development takes around 18% […]

Patient advocates: hard hit at the time of greatest need

With reduced capacity and opportunity for fundraising, extra pressure on support services and attention diverted elsewhere, it will take a long time for them to recover and return to business as usual.

Unlocking virtual medical congresses

Medical congresses – crucial for the presentation of trial data, scientific exchange and the opportunity to engage with medical professionals, patient advocates, media and analysts – have been cancelled, postponed or are moving to virtual/part virtual.